Down Syndrome Resources

[cliaz]

As you all know I am an advocate for children with Autism Spectrum Disorder and Fragile X Syndrome. Lately i've been contacted by a few parents with newborns with Down Syndrome. So I complied a starter packet/email for them and figure since I posted that rather large post with autism resources, I might as well post the Downs one I have in case anyone here knows someone with a child who has DS:

 

Organizations:

 

National Down Syndrome Congress

http://www.ndsccenter.org/

 

National Down Syndrome Society

http://www1.ndss.org/

 

International Mosaic Down Syndrome Association

http://www.imdsa.com/

 

 

Comprehensive Web sites:

 

Riverbend Down Syndrome Parent Support Group

http://www.altonweb.com/cs/downsyndrome/index.htm

 

Down Syndrome Education International (this is a very good website for improving education in young people with Downs)

http://www.downsed.org/

 

D Syndrome.com (a great personal blog site)

http://www.geocities.com/heartland/9253/

 

Online Newsletters:

 

Down Syndrome Quarterly

http://dsrf.org/index.cfm?fuseaction=publications.dsq

 

Creating Solutions

http://www.disabilitysolutions.org/

 

Down Syndrome Amongst Us

http://www.dsau.org/

 

 

Resources for Parents:

 

Standford Center for Research and Treament of Down Syndrome

http://dsresearch.stanford.edu/

 

Afircan American and DS

http://groups.msn.com/minorfamily

 

Autism and Down Syndrome - Duel diagnosis

http://uk.geocities.com/grahamdavidcook@bt...t.com/index.htm

 

Breast Feeding a Child with Down Syndrome

http://www.breastfeeding.asn.au/bfinfo/down.html

 

Communicating Partners

http://jamesdmacdonald.org/Articles/MacDonaldStart.html

 

Creative Exchange Music Therapy

http://www.creativeexchangemusic.com/

 

Diagnosis Down Syndrome - collection of stories from parents with newly diagnosed DS

http://leeworks.net/DDS/

 

Down Syndrome for New Parents

http://www.downsyn.com/index.php

 

Down Syndrome; one mother to another

http://homepage.mac.com/fplace/Menu7.html

 

Have you heard, the abilities of Down Syndrome

http://zyonair.com/community/index.htm

 

How to write a letter of intent - Life planners

http://www.betterwaypress.com/lifeplanners/

 

Love and Learning - Reading and Language Development

http://www.loveandlearning.com/home.shtml

 

Special Needs Planning, Resources and Advocacy

http://www.diannjones.com/

 

OT Exchange - site for pediatric Occupational Therapists and parents who utilize OTs

http://www.otexchange.com/

 

Down Syndrome - A Parent's resource

http://www3.sympatico.ca/terry.edwards/Shelby.html

 

 

NON-PROFIT FOUNDATIONS:

 

The Annie Forts up syndrome Fund

http://www.anniefortsupfund.org/

 

Down Syndrome Research Center and Treatment Foundation

http://www.dsrtf.org/

 

Down Syndrome Advocacy Foundation

http://www.dsafonline.org/

 

Down Syndrome Research Online Advocacy Group

http://www.dsresearch.org/

 

The Karen Gaffney Foundation

http://www.karengaffneyfoundation.com/

 

The Lindsey Rae Foundation

http://lindseyrae.com/

 

Personal ponies Ltd

http://www.personalponies.org/

 

The possible dream foundation

http://www.possibledream.org/

 

 

OTHER RESOURCES

 

National Down Syndrome Society groups in maryland

http://www1.ndss.org/index.php?option=com_...&Itemid=274

Edited June 29, 2008 by cliaz

[loaf]

nice work, thanks!