MikesVikes Posted May 22, 2008 Share Posted May 22, 2008 Here's a related story about an autistic child just to piss you off. Church tells family not to bring the kid or you're going to be arrested. Quote Link to comment Share on other sites More sharing options...
Double Agent Posted May 22, 2008 Share Posted May 22, 2008 Here's a related story about an autistic child just to piss you off. Church tells family not to bring the kid or you're going to be arrested. I'm going to have to side with the Church on this one. Quote Link to comment Share on other sites More sharing options...
Azazello1313 Posted May 22, 2008 Share Posted May 22, 2008 I'm going to have to side with the Church on this one. +1. no way it gets to that point if the kid isn't a major disruption. the sad part is, the parents apparently aren't the type you can just go to and say look, this isn't working out, we have to start doing something else with him during church. nah, these people need a restraining order before they'll listen to anyone else. Quote Link to comment Share on other sites More sharing options...
millerx Posted May 23, 2008 Share Posted May 23, 2008 Two of my closest friends have each had boys with Autism. We did some research for my son and then gave our Pediatrician a different schedule for receiving all of the same vaccinations. They key is to ask them to split them up instead of giving them all together in one shot. You don't have to decline the vaccinations, just ask them politely to do them one at a time over a period of a few months or so. They will do it, even if reluctantly. Don't take any chances with your children. +1 I haven't read through the entire post yet, but I will (this is a very important topic to me). I just wanted to get my two cents in. Very similar story in my world. Close friends with autistic girl, swear that the vaccinations were the cause. The dad is a dentist (and had training as a doctor) a was very reluctant to blame science as the cause...but he did a lot of research and has come to the same conclusion. They are not against vaccines, just against the combining of all of them at one time. All the shots together is just too much for some of these little bodies to take. Pediatricians go by what they are taught. They are told that it is fine, but history will show that just because they say it is okay, doesn't make it so. There is absolutely no harm in breaking up the the shots into individual visits. And don't let them doctors pressure you either. They will sometimes make you feel as though you are not the expert, but like some others have said, it is YOUR child not theirs...take the precautions. Quote Link to comment Share on other sites More sharing options...
cliaz Posted May 23, 2008 Share Posted May 23, 2008 LordOpie, if you wanna chat about Autism Spectrum disorder and/or need information on it, PM me. Quote Link to comment Share on other sites More sharing options...
CaP'N GRuNGe Posted May 23, 2008 Share Posted May 23, 2008 (edited) Also, Whooping Cough (Pertusis (sp?)) has become a problem again in Colorado. Wanna know how it's spread? By adults! Adults who haven't had a booster shot in years. Apparently, you've got enough in you to protect you, BUT not enough to prevent you from being a carrier. So, our doc advised us to get updated the next time we see our own doctors. just food for thought. The healthcare company i work for is going over all employee medical records and requiring immunizations now for everybody. If you don't have it on record, they draw blood and can tell if you are protected or not. I ended up having to get a Mumps vaccination. At the same time, the nurse told me about the whooping cough. She asked when the last time I had a Tetanus shot was and I couldn't remember. So she suggested if I wanted I could get a DTP or whatever the combo is called shot which includes the Pertussis as a booster. Employer paid, so why not? Edited May 23, 2008 by CaP'N GRuNGe Quote Link to comment Share on other sites More sharing options...
Chargerz Posted May 23, 2008 Share Posted May 23, 2008 Some people believe autism is caused by vaccines — particularly the measles-mumps-rubella vaccine (MMR), as well as vaccines containing thimerosal, a preservative that contains a very small amount of mercury. But extensive studies have shown no link between vaccines and autism. Good info here. This subject has been looked at over and over and no link between vaccinations and autism has ever been proven. And don't let them doctors pressure you either. They will sometimes make you feel as though you are not the expert, but like some others have said, it is YOUR child not theirs...take the precautions. A doctor should never use pressure and intimidation to make a parent get their child vaccinated. If the studies showing no link aren't enough to persuade parents to get vaccinations for their children, then they won't get them. It's that simple. Quote Link to comment Share on other sites More sharing options...
cliaz Posted May 23, 2008 Share Posted May 23, 2008 I, personally do not think that Vaccinations cause autism spectrum disorder. I think that if you already have a genetic marker for autism spectrum disorder, vaccinations may amply the symptoms - not cause it. Here are some informative links.... http://www.autism-pdd.net/autism-symptoms.html http://groups.msn.com/TheAutismHomePage/startpage.msnw http://www.autism-biomed.org/poster.htm http://www.msnbc.msn.com/id/6895311/ http://www.cdc.gov/ncbddd/autism/actearly/milestones_3months .html http://www.neurologychannel.com/autism/diagnosis.shtml http://www.raisingdeafkids.org/special/autism/index.jsp http://autism.about.com/cs/whatisautism/l/blcharac.htm http://www.cincinnatichildrens.org/health/info/mental/diagno se/autism.htm http://www.autism.about.com/ http://www.cdc.gov/ncbddd/autism/ http://www.childbrain.com/pddq5.shtml http://psychology.plebius.org/disorders/autism/4/diagnosis/ http://www.jeena.org/autism/tests.htm http://www.nationalautismassociation.org/treatments.php http://www.firstsigns.org/treatment/dx.htm What to expect from an Evaluation http://www.fetaweb.com/help/eval.expect.meyer.htm AND http://www.pedneuro.com/services.shtml (thanks Gabu) Wondering if it could be autism? Here are links to information about some onlne tests.... The tests are not ment to diagnose but to act as a guide and to give you information to discuss with your child's Dr. http://www.childbrain.com/pddq6.shtml http://depts.washington.edu/dataproj/chat.html CHAT checklist http://pediatrics.about.com/od/autism/l/bl_autism.htm http://autism.about.com/cs/medicaltreatments/a/txchecklist.h tm http://home.isoa.net/%7Enitetrax/cars.htm http://www.asaoakland.org/chat.htm http://www.neurotransmitter.net/pddst2.pdf http://www-personal.umich.edu/%7Epdpatel/DSM%20files/ABC_che cklist.pdf http://www.neurotransmitter.net/autismscales.html http://www.patientcenters.com/autism/news/diag_tools.html http://www.aspires-relationships.com/articles_dx_assessment. ...htm http://www.autism-pdd.net/forum/forum_posts.asp?TID=59&P N=4 Adults with Aspergers - What about you? http://www.iidc.indiana.edu/irca/generalinfo/standardtests.h tml http://www.forepath.org/ DSM IV CRITERIA FOR Childhood autism, Asperger's syndrome, Rett's disorder, Childhood disintegrative disorder, PDD NOS http://www.childbrain.com/pddq3.shtml AFTER THE DIAGNOSIS TESTING http://www.greatplainslaboratory.com/autismrec.html#top The Do's and Don'ts after a diagnosis A print out for your family�s and friends (Thanks Karrie) Looking for information and ideas? Here are some links to help you.... http://www.support4hope.com/autism/autism_adults.htm ------------------------------------------------------------ ----------------------- Yellow Pages for Kids with Disibilities Separate listings for each state and territory, Disability information groups, Evaluators, Tutors, Support groups, Advocacy groups, and State agencies... Advice for Parents of Young Autistic Children This paper is geared toward parents of newly diagnosed autistic children and parents of young autistic children who are not acquainted with many of the basic issues of autism... ------------------------------------------------------------ --------------------------- http://www.patientcenters.com/autism/ Interview with Mitzi Waltz: Autistic Spectrum Disorders. Author-advocate Waltz, now studying at the Autism Research Unit, answers questions about the increasing number of diagnoses, potential link with immunizations, autism and genetics, current treatment research, and the impact on families. Books and Other Resources * Autistic spectrum disorders * Books by adults with ASDs * Children's books * Websites about ASDs * General disability * Health care and insurance * Parenting and siblings * Special education * Childproofing * Special-needs clothing * Specific therapeutic interventions * Transition planning and adult issues Support and Advocacy * National autism/ASD organizations * Online support groups * Related conditions * General special needs * Legal advocacy PDD Connections WebRing This is the home page for a WebRing (web sites linked one to another, as in a circle) designed to help people find useful information about pervasive developmental disorders. Topics include a definition of autism, pervasive development disorders, and related resources. This WebRing is helpful for anyone living with, or trying to understand a child with ASD. # Diagnostic Tools * The Autism Research Institute's Form E-2 Check List * The Childhood Autism Rating Scale (CARS). Research and Testing Facilities Medication Reference Describes the medications that may be prescribed for ASDs. Supplement Reference Great resource for nutritional supplements and herbal remedies pertinent to ASDs Autistic Spectrum Disorders is a new book by Mitzi Waltz, a revised and updated edition of Pervasive Developmental Disorders The Diagnostic Merry-Go-Round. The diagnosis of ASD is usually a frustrating process of diagnosis by elimination, after a range of specified conditions in the autistic spectrum and related conditions are ruled out. Getting a Diagnosis: Starting with a Pediatrician. The journey to a diagnosis of ASD can begin in different ways, but for most it starts in a pediatrician's office. Tips for Daily Family Life. There are a lot of things about raising a child with ASD that teachers, therapists, and doctors don't know much about. Hints from parents about daily life, including tips on haircuts, bathing, clothing, selecting furniture, and safety precautions. Record Keeping. Some advice on what records to keep, and how. Stresses on Families. This article shares some problems of families under stress and methods for coping. Problems addressed include withdrawal or overinvolvement by a parent, effect on siblings, isolation, finding the right therapist, separation and divorce, single parents, non-custodial parents, and adoption and foster care. Parenting: Disciplining a Child with PDD. Whole families are affected by PDDs. This article focuses on discipline issues: how do you respond when "normal" parenting advice may not apply? Direct and Indirect Financial Support for Families. Some programs are available that may provide you or your family with financial support. Even though the amounts may be small, they may allow you to stretch already strapped resources. After an IEP is in Place: Educational Issues. Your job in helping your child become educated in school doesn't end once you have an educational plan in place. This article addresses issues such as: monitoring progress, extended school year services, dealing with behavioral dilemmas, suspension and expulsion, 504 plans, taking on the school system, private schools, homeschooling, and transition planning ------------------------------------------------------------ ----------------------------- Wondering about the differance in ASD's? Here are links to help guide you.... Low / High Functioning Autism Please Read http://www.msnbc.msn.com/id/6895447/ http://info.med.yale.edu/chldstdy/autism/aspergers.html http://www.answers.com/autism+spectrum+disorder&r=67 http://www.wrightslaw.com/info/autism.index.htm http://www.answers.com/topic/pdd-not-otherwise-specified?hl= pdd http://www.answers.com/topic/pdd http://www.answers.com/topic/pervasive-developmental-disorde r?hl=pdd http://www.drspock.com/article/0,1510,5473,00.html?r=related http://www.autism.org.au/UNDERSTANDING%20DIAGNOSIS.htm http://www.brighttots.com/Childhood_Disintegrative_Disorder. html http://www.udel.edu/bkirby/asperger/aspergerscaleAttwood.htm l MEDICATION & SUPPLEMENTS Common Medications Used To Treat Autism Medications Information http://pediatrics.about.com/od/autism/a/05_autism_rx.htm - different treatments & Meds Risperdal and the Aggression of Autism Risperdal Clonidine Supplements Want the facts or some general info? Here are links for that... Autism In The News LINKS Galore! http://www.medicinenet.com/script/main/forum.asp?articlekey= 13881 http://www.parents.com/articles/health/5716.jsp?page=1 http://www.communityinclusion.org/publications/pddbook.html http://maapservices.org/MAAP_Sub_Find_It_-_PDD_Articles.htm http://groups.msn.com/TheAutismHomePage/echolaliafacts.msnw http://autism.about.com/cs/whatisautism/a/autismfaqtwo.htm http://www.insidethebubble.co.uk/articles.php http://www.autismweb.com/ http://www.irsc.org:8080/irsc/irscmain.nsf/cat?readform& cat=Autistic+Spectrum+Disorders&type=Web+Pages http://www.msnbc.msn.com/id/6895311/ http://www.msnbc.msn.com/id/6895447/ http://www.ausm.org/Information/General/testinfo.htm http://www.autism.org/adviceforparents.html (Thanks Jean) http://www.hhrehab.org/childservices/autismservices/Default. htm http://www.rainbowpediatrics.net/faq/7.21.html How Can A Parent Help? Extraordinary Parenting - Autism Cartoons shed light on autism Pathways to Progress ..... Explaining A Diagnosis AND how to tell others about the diagnosis Sibling Help -- http://www.autism.org/sibling/sibneeds.html The Discovery Of "Aspie" Criteria Savant Abilities. (Thanks Sarah) Head Circumference / Autism http://www.cheapceus.com/Autism_05.html (Thanks Jean) Autism / Mercury / Metals / Chelation http://www.askdrsears.com/faq/mc3.asp Can MMR be given separately? http://www.autismmedia.org/media1.html where to find the MMR separate Banning Mercury In Vaccines support removal of thimerosal from shots http://www.thehealthcrusader.com/pgs/excalibur/article_2005_ 03_17_1401.shtml Scroll 2/3 way down Thimerosal Is Still In Vaccines And Just a reminder........ School Vaccines NOT Mandatory Reduce Your Stress Level Potty Training Play http://autism.about.com/cs/adadsjournal/a/movingjournal.htm moving tips Speech Delays and Communication COMMON CO-OCCURRING CONDITIONS IN AUTISM Pages 1 2 Changes in Routine Equals Changes in Behavior Behaviors Behavior modification controlling tantrum Autism Service Dogs of America Autism Business Cards 4 Public Awareness Calming Activities SIBLINGS OF INDIVIDUALS WITH AUTISM/PDD Find HARD TO FIND T shirts here... http://store.yahoo.com/stylinonline/ SAFTEY ITEMS Safety Stickers - http://www.unlockingautism.org/detail.asp?PRODUCT_ID=safetys ticker Home Door / Window Alarms http://www.homesecuritystore.com/ezStore123/DTProductList.as p?p=2_1_1_1_0_0_118&engine=adwords!276&keyword=%28 do or+alarms%29&match_type = http://store.yahoo.com/nextpowerusa/fial8wiwidoa.html http://www.janet1.freeuk.com/ http://www.spymaster.com/home.door.protection.html http://www.globalsources.com/manufacturers/Door-Alarm.html Kid Alarms http://www.ion-kids.com/ http://www.brickhousesecurity.com/childsafety.html http://shopping.yahoo.com/search;_ylc=X3oDMTFjdDZpbGpvBF9TAz k2MDc5MjYwBGsDY2hpbGQgbG9jYXRvcgRzZWMDa2IEc2xrA3RpdGxl?p=c hi ld+locator http://www.safetydefenseproducts.com/childguard.htm http://www.itave.com/smart_guard.html 911 GPS Child Watch http://www.hardwares.globalsources.com/si/6007000636832/yste ch.co Medical Alert http://www.mypreciouskid.com/medical-id-bracelet.html http://www.lifejewelry.com/ http://www.hahoriginals.com/catalog/defaul...Path=66_63& amp; amp; amp; amp; amp;osCsid=7b511578ed6fdb5be67184da2d0a4bed http://www.laurenshope.com/ http://www.n-styleid.com/ http://www.medicassist.com/ http://www.medicid.com/ http://www.medicalert.org/home/Homegradient.aspx http://www.bindependent.com/hompg/bi/bindep/store/aisles/gai ncontrol/medmanageprod/idjewelry.htm http://www.jewelbasket.com/medical-alert-id-bracelets.html http://www.americanmedical-id.com/home/?usersession=931a85b3 5c9beea0b42f659b165dcda6 http://www.medicalert.org/home/Homegradient.aspx School related Protection and Advocacy Special Ed rights for parents and Kids http://www.bbbautism.com/vol_2_issue1_iep.htm - ***WONDERFUL LINKS!!!! Writing IEP�s For Success http://www.dredf.org/ www.wrightslaw.com http://wrightslaw.com/info/esy.index.htm - Extended School Year Building a Better Homework System Autism Education Network A Guide To Letter Writing What Is An IEP? MultiFactored Evaluations Whose IDEA Is This? 10 common IEP mistakes Specific Disability / Class accommodation Instructional Methods / Accomodations Programming / Teaching Tips for Teachers Back 2 School Tips 4 Special Needs Kids Advocating iAbida Special Needs Education Paraprofessionals Rapid Prompting Method severely autistic http://millermethod.org/ http://www.autismtreatmentcenter.org/contents/about_son-rise /what_is_the_son-rise_program.php Activities to Improve Learning through .. Fun Educational Activities &More For Kids Teaching / Learning Related http://www.elliecards.com/ - elliecards� are a complete set of picture cards intended as an augmentative communication system for young children with special needs. Designed to be used for children with autism, speech disorders, and various learning disabilities, elliecards� are an invaluable learning tool for parents, therapists and educators. Created by parents who had little success using other picture card systems on the market, this product uses photos that are realistic to everyday life, come laminated and completely assembled in an easy-to-use binder. http://www.autismteachingtools.com/ http://www.otawatertown.com/toylist.html http://www.do2learn.com/ BEHAVIOR RELATED http://rsaffran.tripod.com/aba.html http://www.christinaburkaba.com/History.htm http://www.brighttots.com/aba_therapy.html http://www.redandgreenchoices.com/about.htm http://www.bia4autism.org/ http://www.wrightslaw.com/info/autism.methods.compare.pdf http://www.polyxo.com/aba/ http://www.easychild.com/parentingclick2.htm http://www.wrightslaw.com/news/2002/jaynes.tarkan.nytimes.ht m Speech Related Signing (Thanks Anne) Pecs Info.... (Thanks Gabu) http://www.polyxo.com/visualsupport/pecs.html http://www.pecs.com/ http://www.tacanow.com/pecs.htm http://www.cesa7.k12.wi.us/sped/autism/assist/asst10.htm Echolalia - http://www.autisticsociety.org/modules.php?name=Encyclopedia &op=list_content&eid=36 Echolalia - http://www.answers.com/topic/echolalia Echolalia - http://www.utdallas.edu/~rollins/A_I/echo.pdf ADOS Facts - http://www.wpspublish.com/Inetpub4/w090205.htm PRT - http://autismone.org/AutismOne2004/presentations/45%20Koegel %20Robert%20and%20Lynn%20Koegel%20-%20sent.doc PRT - http://www.autismteachingtools.com/page/bbbbfg/bbbbqc PRT - http://www.dbpeds.org/articles/detail.cfm?TextID=229 Testing Info - http://www.ausm.org/Information/General/testinfo.htm Vocabulary Videos for Autistic Toddlers The Vocabulary Builder video series has proven to be very effective for toddlers with language delays due to autism. Click here to read what parents have to say about these videos. Sponsored by: http://www.babybumblebee.com ABA Videos - This service incorporates the strategies of video modeling and Applied Behavior Analysis into an educational tool to be used by children, parents, educators and Paraprofessionals in the form of video. Video modeling provides children with the skills to create, improve and enhance receptive and expressive skills. TEETH GRINDING http://www.dentalarticles.com/reader/pt12.htm http://www.ncrdoctors.com/ncr_helps_conditions/ncr_articles_ teeth_grinding.html http://www.doctorndtv.com/topics/detailtopics.asp?id=506 This is questionable.... http://www.autism.org/rett.html FEEDING ISSUES Sensory Integrative related feeding probs Functional Feeding Issues in Autism Pages 1 2 g/f c/f diet Pages 1 2 The Gluten/Wheat Free Guide to Eating Out - A new book on the market called "The Gluten/Wheat Free Guide to Eating Out" with over 50 national/regional restaurants' gluten and wheat free menu items. SENSORY ISSUES Sensory Integration - Must Read How to know if its sensory / What to do Sensory Defensiveness & Sensory Diet Sensory Integration & Teaching Strategies WEIGHTED PRODUCTS Vests http://www.specialkidszone.com/Product_Level1.asp?CategoryID =38 http://www.beyondplay.com/CATALOG/SEN3.HTM http://www.calmcomforts.com/vest/vests.htm http://www.comeplaytoys.com/kids/CPM-070.HTM http://members.aol.com/encourmin/autism2.htm http://www.otvest.com/ http://www.theraproducts.com/index http://www.pfot.com/ShowProducts.php?interest=Sensory http://www.saltoftheearthweightedgear.com/vestpage.html http://www.myweightedblankets.com/vests http://search.ebay.com/weighted-vest_W0QQfkrZ1QQfromZR8 http://www.saltoftheearthweightedgear.com/index.html Blankets and Other http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368 http://www.beyondplay.com/CATALOG/SEN3.HTM http://www.calmcomforts.com/blanket/blankets.htm http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/ http://www.saltoftheearthweightedgear.com/fabricspage.html http://www.weightedblanket.net/ http://www.myweightedblankets.com/pricing___orders http://www.ikea.com/webapp/wcs/stores/servlet/ProductDisplay ?catalogId=10101&storeId=12&productId=16269&la ng Id=-1&parentCats=10107*10210 (Hanging Seat) CATALOGS for Special Needs (and sites to order from) http://www.otawatertown.com/resources.html http://www.pfot.com/ShowProducts.php?interest=Sensory http://www.specialkidszone.com/ http://www.beyondplay.com/index.htm http://www.theraproducts.com/index http://www.specialneedstoys.com/ http://www.stars4kidz.com/ http://www.superduperinc.com/catalog.htm http://www.difflearn.com/ RESOURCES Misc resources listed by state -- http://www.autism-pdd.net/resources-by-state.html State Specific Yellow Pages Autism Resources In Canada Respite Service Locator Protection and Advocacy National Resources for Special Needs Spec Needs Advocate / Attorney Directory Special Ed: Putting the Pieces Together SSI (Social Security) SSI re evaluation (Thanks Tabitha) School Vaccines NOT Mandatory Banning Mercury In Vaccines SLEEP PROBLEMS 1 suggestion... since these kids like predictibility and routine and resist change... DONT START SOMETHING YOU DONT WANT TO HAVE CONTINUE. SO here are some suggestions to try Some say its a chemical imbalance with the seritonin levels in their body... many swear by giving their child supplements like Melatonin PLEASE CHECK with your childs dr to find a safe amount if you choose this route Melatonin for Sleep Disturbances in Children For me part of the help was a small dosage of Clonidine.... even now at 9 1/2 without medication he can not fall asleep until well after 1 am! ** ALSO NOTE keeping a journal of when your child sleeps and is awake daily behaviors and so forth is a good idea.. sometimes it gives you better knowledge os what is going on when you can look back over the past several days or weeks and start seen a predictable pattern with your child. Reward chart Calming Activities like heavy loading or deep pressure massage Many believe this is sensory related.. I will include some links here How to know if its sensory / What to do *NOTE this also includes calming activities* Sensory Integration - Must Read Sensory Defensiveness & Sensory Diet Sensory Integration & Teaching Strategies Bed tents - they block out the outside stimuli providing a calming and quiet environment for the child to relax and go to sleep Many special needs catalogs sell them here are some links to various places http://www.target.com/gp/browse.html/601-3573889-0737750?%5F encoding=UTF8&node=13419891 http://froogle.google.com/froogle?q=twin+size+bed+tents& hl=en&lr=&sa=N&tab=ff&oi=froogler *** Just type in a search for TWIN SIZE BED TENTS and something should come up*** WEIGHTED BLANKETS! This has been the final thing to really help my son and many other kids here! It isnt 100% but for my son its been 98% I never would have believed if someone had said he would sleep through the night from day 1 but he did! http://www.specialkidszone.com/Product_Level3.asp?ProductID= 1368 http://www.beyondplay.com/CATALOG/SEN3.HTM http://www.calmcomforts.com/blanket/blankets.htm http://www.theraproducts.com/index/page-catalog/main-8161/su b-8289/ http://www.saltoftheearthweightedgear.com/fabricspage.html http://www.weightedblanket.net/ http://www.myweightedblankets.com/pricing___orders Here is some general info about Sleep problems in ASD kids.... http://www.angelfire.com/tn3/task/sleep.html http://aut.sagepub.com/cgi/content/abstract/5/2/209 http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=367&a=3376 *good Info here Organizations First I would say it may help to contact www.unlockingautism.org They have a Parent 2 Parent Network listed that will help connect you to a parent in your state to help you find resources. I know the VP of the organization lives in Georgia (Atlanta area I believe) They also have a national call center 866-366-3361... both are on the front page there are also links for so many things... heres the links pages as I know for some it is confusing how to get there... http://www.unlockingautism.org/news.asp?action=2 they have info on * General Links * Early Diagnosis / Intervention * Biological & Biomedical Treatments * Behavioral Treatments * Nutrition & Diet * National Organizations * Helpful Link Sites * Vaccine Information * Asperger's Syndrome * Books on Autism * Education and Law * Sensory / Auditory Issues * Speech and Language * Occupational/Physical Therapy * Home Schooling FIND YOUR LOCAL Autism Society of America Chapter here http://209.200.89.252/search_site/index.cfm Other organizations are listed here.... In your Opinion (Thanks Rose) LEGAL RESOURCES CHANGES IN SSI http://www.clsphila.org/abc_for_advocates_files/training_mat erial.htm Supplemental Security Income / Social Security Administration http://autism.about.com/od/ssissa/ DISABILITY BENEFITS http://www.bizdir.org/index.phtml?browse=/Home/Personal_Fina nce/Retirement/Social_Security/Disability_Benefits/ LISTING OF MEDICAID, MR/DD, DEEMING WAIVER, TEFRA & OTHER ASSISTANCE PROGRAMS http://www.geocities.com/HotSprings/Villa/1029/medicaid.html Disability, Advocacy, Knowing Our Rights http://headaches.about.com/od/disability/ BOOKS Autism Resources http://www.nap.edu/books/0309072697/html/ http://www.amazon.com/gp/reader/0399523863/ref=sib_dp_pt/104 -2414085-4493562#reader-link http://www.amazon.com/exec/obidos/ASIN/1891383132/ref%3Dpd%5 Fsxp%5Felt%5Fl1/104-2414085-4493562 http://www.amazon.com/exec/obidos/tg/detail/-/185302967X/ref =pd_sim_b_6/104-2414085-4493562?%5Fencoding=UTF8&v=glanc e http://www.amazon.com/gp/reader/0312326440/ref=sib_dp_pt/104 -2414085-4493562 http://www.amazon.com/gp/reader/0309072697/ref=sib_dp_pt/104 -2414085-4493562 http://www.amazon.com/exec/obidos/search-handle-form/104-241 4085-4493562 Quote Link to comment Share on other sites More sharing options...
Double Agent Posted May 23, 2008 Share Posted May 23, 2008 Awesome post Cliaz. My best friend's little girl is autistic. I'm going to forward him these links in case he doesn't know about them. Quote Link to comment Share on other sites More sharing options...
cliaz Posted May 23, 2008 Share Posted May 23, 2008 Awesome post Cliaz. My best friend's little girl is autistic. I'm going to forward him these links in case he doesn't know about them. If he has any questions, PM me and i'll give you my email address [this goes for anyone on the boards]. I deal with the director of Autism research for Kennedy Krieger and have many friends and connections both in the social worker arena and in the ARC program. There are MANY free resources that are fantastic for families who have children with ASD and FX. Quote Link to comment Share on other sites More sharing options...
SuperBalla Posted May 23, 2008 Share Posted May 23, 2008 If he has any questions, PM me and i'll give you my email address [this goes for anyone on the boards]. I deal with the director of Autism research for Kennedy Krieger and have many friends and connections both in the social worker arena and in the ARC program. There are MANY free resources that are fantastic for families who have children with ASD and FX. Nice job my friend. Quote Link to comment Share on other sites More sharing options...
Double Agent Posted May 23, 2008 Share Posted May 23, 2008 If he has any questions, PM me and i'll give you my email address [this goes for anyone on the boards]. I deal with the director of Autism research for Kennedy Krieger and have many friends and connections both in the social worker arena and in the ARC program. There are MANY free resources that are fantastic for families who have children with ASD and FX. I'll do it and I appreciate it. It's such a scary disorder. She's the most precious 4 year old you'll ever see. And she's completely lost in her own world. Quote Link to comment Share on other sites More sharing options...
millerx Posted May 23, 2008 Share Posted May 23, 2008 Well done Cliaz! I'm never surprised about all the good intentions and decency that is shared at the Huddle when life-impacting concerns are brought up. LordOpie, you responded to my post, and I feel as though I owe you greater insight into my comments. As I stated before, I have very close friends that I have watched raise their daughter with this terrible affliction. We are like a second family to their daughter and therefore I have tried to educate myself on the subject as well. I don't want my last comments to make you panic. All I wanted you to know is that there are a lot of studies that don't show a causl link between the vaccines and Autism, but there are others in the medical field that DO see a causal relationship. It's not that vaccines can directly cause Autism, but like some have said, it might be the trigger if the child is genetically predisposed to it. Because the symptoms start to reveal themselves at the same age that the kids are getting the shots, I can understand the causal diagnosis. I can therefore also see why it can be discredited as the cause. All I know is that some kids have an adverse effect when given so much at one time (i.e. fevers,etc), and that the overall harm of spreading out the vaccines seem to be less than the harm that can potentially be caused by taking the risk of the "all in one" shot. I am all for getting the vaccines (as is the family I know with the autistic girl). Just give it some thought. You have the time to look into it (being how young she is) but I applaud your foresight into her well being. I was raised to hold doctors and professionals with great esteem. I wonder sometimes if that has blinded me from looking deeper. Having seen and experienced the situation that can come with that blind trust has made me think twice before rushing into acceptance of all that a doctor tells me. Hell, that's why people look for second, third, and forth opinions. On a side note, I'm trying not to sound like a conspiracy theorist here, but what dollar amount would you put on a class action lawsuit that was able to prove a large percentage of Autism was caused by the pharmaceutical companies and FDA? Thankfully they have a clean track record... Quote Link to comment Share on other sites More sharing options...
cliaz Posted May 25, 2008 Share Posted May 25, 2008 Anyone who knows someone who has just had a child diagnosed or have had one of your children diagnosed, this link will give you the 100 day kit to understand options and rights towards your child: http://www.scribd.com/doc/2578533/100-Day-...ou-are-diagnose Quote Link to comment Share on other sites More sharing options...
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