AtomicCEO Posted October 24, 2007 Share Posted October 24, 2007 It probably should not surprise you , Club, that your pm box is full. Quote Link to comment Share on other sites More sharing options...
The Irish Doggy Posted October 24, 2007 Share Posted October 24, 2007 Most excellent. Quote Link to comment Share on other sites More sharing options...
isleseeya Posted October 24, 2007 Share Posted October 24, 2007 excellent news ..prayers and best wishes continue for you and your family Club Quote Link to comment Share on other sites More sharing options...
PSULions Posted October 24, 2007 Share Posted October 24, 2007 Very good news Club!!! Quote Link to comment Share on other sites More sharing options...
Savage Beatings Posted October 24, 2007 Share Posted October 24, 2007 Just saw this Club, and am very happy to hear that things are not worst case scenario for you guys... I'll keep praying for your baby (and you and your wife of course!). Quote Link to comment Share on other sites More sharing options...
Clubfoothead Posted December 1, 2007 Author Share Posted December 1, 2007 OK here we go. Â We went in on December 19th for another unltrsound with a neonatal cardiologist becsuae me wife's OB was concerned about the hole in the baby heart. One of the frustrating things is we have to keep letting her get older and develop more to get a handle on things. Short version is she has a severe case of what is called Tetralogy of Fallott. More info here if interested: http://www.mayoclinic.com/health/tetralogy...0615/DSECTION=1 Â The hole is so large that blood flows between the ventricles and oxygenated blood from the lungs mixed with unoxygenated blood going to the lungs. She will also have problems maintaining proper blood pressure. Her case is sever enough that without immediate surgery she will die without ever leaving the hospital. She will be transferred from Presbyterian Hospital to Medical City the day after she is born for her first surgery. She will spend her first two weeks of life in intensive care. When she's a year old they will do the second surgery to close the hole in her heart. Then when she's about 2 they may need to go in and repair or replace her pulmonic valve. Â Not great but there's a 95% chance that everything is going to turn out fine and 10 years from now we will have to remind ourselves of these tough times. Of course you are bucking the odds just to find yourself in this position as there's over a 99% chance your kids will never develop this. I get that, I'm hoping my wife doesn't. Financially, our new insurance is kicking in 20% of the cardiologist's bills until the baby is born. We are probably financially ruined as the medical bills will easily approach 200k but that's for my family to deal with and we aren't going to be accepting anymore money. And I know everyone will be wishing us the best. On a positive note, I'm probably going to be making the playoffs in all my leagues so at least I will be able to play for free next year. Â The casue of this is unknown, it lists some potential factors but none apply in our case and of course, there's no such thing as Gulf War Syndrome despite the fact this condition is found in significantly higher percentages in the children of Desert Storm vets. In the end, it doesn't really much matter what the cause is to us now, it's here and we will do what we have to do. Why is irrelevant for us. Â Anyways, I had hoped to have better news in this update but things are what they are. I know many of you will feel compelled to do something - I know I always feel better when huddlers I know are facing trying times if there is something I can do to help. So, if you want to know what you can do for me, if the time comes and Thews' daughter needs some bone marrow, go get your blood tested knowing that if you are a match you will save her life. Â Now, I've got to get a 4 year old ready for the Nieman Marcus Christmas Parade. Let's all have a good weekend. Quote Link to comment Share on other sites More sharing options...
Czarina Posted December 1, 2007 Share Posted December 1, 2007 That's tough news, Club. Hang in there. At least you have a handle on what needs to be done now. Â One of my nephews has a genetic syndrome that includes heart issues. He had surgery as a newborn to repair a hole, and has had to have surgery to replace some valves later on. It's truly remarkable what they can do now, even compared to just 5 years ago. Quote Link to comment Share on other sites More sharing options...
rocknrobn26 Posted December 1, 2007 Share Posted December 1, 2007 I realize the news is not great, but it offers some hope! Stay on an even keel, club. We are all here for you and yours. Peace, my friend! Quote Link to comment Share on other sites More sharing options...
Chief Dick Posted December 1, 2007 Share Posted December 1, 2007 Continued prayers and positive vibes to you and your family. Quote Link to comment Share on other sites More sharing options...
Down Goes Frazia Posted December 1, 2007 Share Posted December 1, 2007 I realize the news is not great, but it offers some hope! Â Â yep..... always thinking of you club. Quote Link to comment Share on other sites More sharing options...
AtomicCEO Posted December 1, 2007 Share Posted December 1, 2007 Â I'm sure the baby will be fine, but this whole money thing most be a dark cloud. Keep on keeping on. These things have a way of not being as bad as they seem in the long run. Quote Link to comment Share on other sites More sharing options...
Ursa Majoris Posted December 1, 2007 Share Posted December 1, 2007 Â I'm sure the baby will be fine, but this whole money thing most be a dark cloud. Keep on keeping on. These things have a way of not being as bad as they seem in the long run. What ACEO said. Your outlook is very positive and that's what is needed right now. We are all pulling for you and your family. Quote Link to comment Share on other sites More sharing options...
untateve Posted December 1, 2007 Share Posted December 1, 2007 Not great but there's a 95% chance that everything is going to turn out fine and 10 years from now we will have to remind ourselves of these tough times. Â This is where you focus. When anxiety and fear take over, this is where you focus. You'll be in my thoughts. Quote Link to comment Share on other sites More sharing options...
Timmypg Posted December 1, 2007 Share Posted December 1, 2007 Prayers still coming Club. Quote Link to comment Share on other sites More sharing options...
Avernus Posted December 1, 2007 Share Posted December 1, 2007 yeah when I read hole in baby's heart I just ....ugh...that's f'n horrible to hear/read etc....you lose all emotion after reading something like that... Â I will definitely send prayers along... Quote Link to comment Share on other sites More sharing options...
CaP'N GRuNGe Posted December 1, 2007 Share Posted December 1, 2007 All the best to your child and family Club. Thoughts and prayers are with you. Stay strong. Quote Link to comment Share on other sites More sharing options...
Puddy Posted December 1, 2007 Share Posted December 1, 2007 Not great but there's a 95% chance that everything is going to turn out fine and 10 years from now we will have to remind ourselves of these tough times. This is very encouraging giving the circumstances   In the end, it doesn't really much matter what the cause is to us now, it's here and we will do what we have to do. Why is irrelevant for us.  I admire your outlook Club.  Good luck to your family. Quote Link to comment Share on other sites More sharing options...
McNasty Posted December 1, 2007 Share Posted December 1, 2007 This is where you focus. When anxiety and fear take over, this is where you focus. You'll be in my thoughts. Â Couldn't say it better than this. My thoughts and prayers with you and your family, club. Quote Link to comment Share on other sites More sharing options...
wiegie Posted December 1, 2007 Share Posted December 1, 2007 Club, my thoughts and prayers are with you and your family. Quote Link to comment Share on other sites More sharing options...
darin3 Posted December 1, 2007 Share Posted December 1, 2007 Positive vibes sent up the I-35 to you and your family, Clubby. We're here if ya need anything. Quote Link to comment Share on other sites More sharing options...
Cunning Linguist Posted December 1, 2007 Share Posted December 1, 2007 Hang in there Club. Our thoughts and prayers are with you and your family. Quote Link to comment Share on other sites More sharing options...
twiley Posted December 1, 2007 Share Posted December 1, 2007 All the best to you and your family. Quote Link to comment Share on other sites More sharing options...
tonorator Posted December 1, 2007 Share Posted December 1, 2007 in my prayers club. Quote Link to comment Share on other sites More sharing options...
Thews40 Posted December 1, 2007 Share Posted December 1, 2007 Glad to hear the good news. Quote Link to comment Share on other sites More sharing options...
T_bone65 Posted December 2, 2007 Share Posted December 2, 2007 This is great news Club, all the best in everything. Quote Link to comment Share on other sites More sharing options...
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